Welcome to “SAKURA Friends”

Japanese porphyria patients group, “SAKURA Friends” (SAKURA means cherry blossoms) was formed in 1997 by porphyria patients, families and support volunteers. Today the group has 66 members.

The group’s activities include issuing newsletters three times a year, organizing gatherings and study meetings, providing information and encouraging communication among members in the website, etc.

The group makes efforts to:

·          Enhance knowledge about porphyria

·          Encourage communication among members

·          Support research for early diagnosis and improvement in treatment, which ultimately lead to cure

·          Contribute to improve social system and environments for patients and families

We welcome porphyria patients, families and anybody that supports the group’s aim and efforts. Welcome!!!

We are also eager to make friends outside Japan so that we can exchange information and experiences and learn from each other.

Those who read Japanese can find more information about our group at www.sakuratomonokai.com

July, 2007